Acne Rosacea: Re: [rosacea] Having alot of problems lately

Friday, December 08, 2006

Re: [rosacea] Having alot of problems lately

Hi Melissa,

Thanks so much for your reply. Sorry to hear that you are still flushing intensely though. And yes, you DO understand! Was looking for a bridge the other day myself. My guess with the whole milk is because of the milk fat. For a lot of things you need the full fat to get the benefit. Very interesting therapy, I'll give it a try. Thanks.

Take care,
Elena

melissa wohl-battista <melissawohlbattista@yahoo.com> wrote:
Hi Elena,
I am sooooo sorry to hear about what you are going through. I feel your pain (as i am sure we all do) and share your frustration. My derm took me off all topicals because they were too irritating. I had a flush for over 2 days straight and the burning made me want to jump off a bridge (into some cool water). I still flush every day with an intense burn but for less of a duration.
What has helped is to use cool whole milk compresses on my face. This definitely alleviates the burning to some degree. What I do is use the gauze pads specifically for medicinal delivery and pour whole milk over them and then apply one to each cheek. I can only do this at home obviously but it helps considerably with the burning and flushing. Why my derm recommended whole milk I'm not sure but I wanted to share this with you and the group. I hope this helps, Elena and I am here for you as everyone in the group is. I am so thankful for you all- the emotional support (in addition to the information) is priceless!
GOOD LUCK!!
Love,
Melissa

Elena Mutter <emgm42000@yahoo.com> wrote:
Hi Everyone,
Well, it's offical that I am in a pretty bad flare at this point. I am flushing constantly now. It seems to be mostly afternoon, but now it's hard to say; it's kind of constant to a low-level degree and then it will intensify and then go back to this low-level flush/burn. Last night my right eye hurt when I closed it too tight and when I washed and looked in the mirror I noticed there is a bump on the lower outside lid of the right eye. I have never had styes or the chalazon's I've heard talked about. I know that winter is bad for me but this is a whole new level. The last month I have introduced the RED LED acnelamp, and the Aveeno Ultra Calming line of skin care products. But it could be a coincidence as I was noticing redness of a more permanant nature and increased burning since October. My eye doctor also reccomended that I stop taking the 80 milligrams of doxy and go back to the 40 milligrams and switch from Patanol eye drops to Elestat eye drops and
Restasis Eye drops. I have been doing that for about a week. And I am a total mess now. I am burning and flushing on face, ears, top of head, and eyes..........tons of heat coming off these areas. If I put my hands on top of my head you can feel the heat. If I put my hands close to my face, again, you can feel the heat. I am so afraid this is going to go into what happened to me a few years ago. I can't cope with that again. It was pretty unbearable not to be able to even be touched by your childs hand. Not to be able to have clothes on without excruciating pain. So far, it is just my face, eyes and head, but that is how it started before too. It is clear that dermatologist don't know how to handle this disease. Please, does anyone know what kind of doctors handle flushing disease?? I am in a very bad place right now and crying is killing me! I find that I am better when I first wake up but as soon as I get going............take a shower and start my day
it goes bad very fast. I hate and am afraid of drugs but I'd take anything that stops flushing right now, I just can't do this anymore! What are the best ones for flushing again...........clonodine, lyrica and there were others too right? I read Dr. Nases passages last night for the eyes and he reccomended Borage Seed oil too, but didn't we establish here that Borage seed oil made us flush? And now Evening Primrose oil too? Why is it so contradictory?? Sorry, this is long, I know and I am just very desperate and depressed now. The derm will see me next Tuesday and I am waiting for a call from my eye doctor but it is depressing because I know it will come to nothing and I will just have to pray it goes away again..........but what if it doesn't this time?? That's the fear that haunts me.....
~Elena

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