Acne Rosacea: Re: [rosacea] Elena!!!!

HI Ellen,

Okay, I will have one cup of regular coffee. Not sure I'd have a big withdrawal problem as I usually only have 2 cups coffee maxium a day and then when I drink tea, I switch to decaf. I do get caffeine in the form of chocolate but I wouldn't say I eat it every day.........especially since I'm avoiding sugar. But thanks for your input, I wouldn't have thought of it. And thanks for the pat on the back for being a stay at home mom ...........don't get many of those LOL! You know, it's just a vocation. I am not happy anywhere but at home raising my kids and I've never been ashamed of it. I just think it's the most important thing when you take on the responsibility of having children. It's the ONE thing my husband and I agreed on when we were talking marriage. I told him straight out that once children came into the picture I'd never leave them with anyone but me. He agreed. That's not to say that once their dad was home I never went out to work outside the house.
I've done my share of waitressing, house cleaning and odd jobs. Just never anything that made me have to have anyone but me or their dad caring for them. Oh, and unfortunately, I am no where NEAR the 98 pounds I used to be. I am overweight at this point and would love to lose at least 40 pounds; so I'm right there with you LOL! Thanks for your input and taking the time with me.

Take care,
Elena

ellen lafrancis <ellenlafrancis@yahoo.com> wrote:
Elena do NOT stop caffeine cold tukey!!!! From hard experience I can tell you that you will experience a headache like you've never experienced before!!! It's from caffeine withdrawal and it'll be bad. Take a couple/few days and taper down (some coffee in the cup and add water until you are just using a tiny amount of coffee) or do half and half or switch to caffeine tea and taper off that. You do not want to get a caffeine withdrawal headache -- it's bad. And with a little one to deal with on top of it.......really bad.

P.S. All mothers are WORKING mothers.........ESPECIALLY the stay at home moms!!!! Been there, done that and you are a brave, strong soul to be able to continue. I caved in and went to work outside the home because it was somehow (???) easier. You GO girl!!!

P.S.S. Thanks for your suggestions yesterday. I'll talk to the pharmacist (who also happens to be my boss) about the Clonidine though right now, I don't mind the appetite suppressant effect a bit. I'm considerably heavier than your 98 pounds and could use quite a bit less of myself. Hugs to you! Ellen

Elena Mutter <emgm42000@yahoo.com> wrote:
Hi Brian,

Thank you so much for taking the time to address me. Well, you know I want to say no I don't drink alot of caffeine, but I think maybe I do. I was never a big coffee drinker (for me it was tea and I love plain old caffeinated black tea), but the past few years I have been drinking coffee. Usually it is one to two cups in the morning. Regular. Later I switch to tea and it is usually decaf and green now. I think starting tomorrow I will have just decaf coffee and tea and see what happens. As for work, I am a stay at home mom. I've worked here and there (at an afterschool program so my son could be with me) but for the most part I've always been home. Yes, I use Thera Tears alot. I also use GenTeal gel drops. I remember all the posts about the Boswellia. Can I just find it in health food stores in the supplement section like at Wild oats or maybe Vitamin Shoppe or GNC? You've given me some real tangeble things to consider Brian and I very much appreciate it.
Thank you so much.

Take care,
Elena

Brian Shaffner <brianshaffner@earthlink.net> wrote:
Elena,

Re the eyes part of it, curious, do you consume much caffeine? One person
on this list posted that deleting caffenated beverage from their diet pretty
much cleared their occular symptoms. I know for myself, I normally have
very mild occular symptoms, -except- when I drink coffee or black tea and
then my eyes get irritated. It's also a flush inducer for me, so I dropped
it from my diet. Some people think caffeine is innocent because
technically it is a vasoconstrictor and should be helpful, but plainly for
some of us it is not.

Also, I'm curious... has your work environment changed at all?
Specifically, do you work under fluorescent lighting? A dermatologist once
laughed at me because I told them that was one of my worst triggers, but
it's true, and I'm not alone. Fortunately, I've worked from home for the
past three years. When I look at how my rosacea has progressed in the past
decade, it coincides with the period where I was spending alot more time at
the office. (and chugging alot of Starbucks) At this point I would fight
tooth and nail to avoid having to work under those lights on a regular
basis.

Have you tried Thera Tears? A lot of rosaceans seem to really like that
brand of eye drops. As for the burning, have you tried any COX2 and/or
LOX5 inhibitors? (too technical to go into, but a google will retrieve all
the data you could want) There are both natural and synthetic versions. A
natural one is the herb Boswellia. Back in March, I was getting some mild
burning sensations and taking Boswellia for a month appeared to stop them
completely, though it probably also has to do with the fact I eliminated
dairy products and corn from my diet around that time, my two all time worst
rosacea offenders. (in the foods category,at least) In any event, the
burning has not to this point returned.

I realize the above is not terribly concrete for your situation, but hope it
may prove helpful.
Brian
----- Original Message -----
From: Elena Mutter
To: rosacea-support@yahoogroups.com
Sent: Thursday, December 07, 2006 8:27 AM
Subject: [rosacea] Having alot of problems lately

Hi Everyone,
Well, it's offical that I am in a pretty bad flare at this point. I am
flushing constantly now. It seems to be mostly afternoon, but now it's hard
to say; it's kind of constant to a low-level degree and then it will
intensify and then go back to this low-level flush/burn. Last night my right
eye hurt when I closed it too tight and when I washed and looked in the
mirror I noticed there is a bump on the lower outside lid of the right eye.
I have never had styes or the chalazon's I've heard talked about. I know
that winter is bad for me but this is a whole new level. The last month I
have introduced the RED LED acnelamp, and the Aveeno Ultra Calming line of
skin care products. But it could be a coincidence as I was noticing redness
of a more permanant nature and increased burning since October. My eye
doctor also reccomended that I stop taking the 80 milligrams of doxy and go
back to the 40 milligrams and switch from Patanol eye drops to Elestat eye
drops and
Restasis Eye drops. I have been doing that for about a week. And I am a
total mess now. I am burning and flushing on face, ears, top of head, and
eyes..........tons of heat coming off these areas. If I put my hands on top
of my head you can feel the heat. If I put my hands close to my face, again,
you can feel the heat. I am so afraid this is going to go into what happened
to me a few years ago. I can't cope with that again. It was pretty
unbearable not to be able to even be touched by your childs hand. Not to be
able to have clothes on without excruciating pain. So far, it is just my
face, eyes and head, but that is how it started before too. It is clear that
dermatologist don't know how to handle this disease. Please, does anyone
know what kind of doctors handle flushing disease?? I am in a very bad place
right now and crying is killing me! I find that I am better when I first
wake up but as soon as I get going............take a shower and start my day
it goes bad very fast. I hate and am afraid of drugs but I'd take anything
that stops flushing right now, I just can't do this anymore! What are the
best ones for flushing again...........clonodine, lyrica and there were
others too right? I read Dr. Nases passages last night for the eyes and he
reccomended Borage Seed oil too, but didn't we establish here that Borage
seed oil made us flush? And now Evening Primrose oil too? Why is it so
contradictory?? Sorry, this is long, I know and I am just very desperate and
depressed now. The derm will see me next Tuesday and I am waiting for a call
from my eye doctor but it is depressing because I know it will come to
nothing and I will just have to pray it goes away again..........but what if
it doesn't this time?? That's the fear that haunts me.....
~Elena

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