Acne Rosacea: Re: [rosacea] Having alot of problems lately

Thanks Brian. I will read up on it. Having my DECAF coffee this morning.

Thanks again,
elena

Brian Shaffner <brianshaffner@earthlink.net> wrote:
I got mine at Whole Foods. Most places that stock vitamins and herbals
should carry it.

Note that Boswellia -can- have negative side effects in some cases. For
some people it has caused gastro-intestinal disturbances after being on it
over a month. I do not know to what to degree, exactly. The COX2/LOX5
inhibitors are not ideal to be on long term, in most cases I understand, but
I am far from an expert on it. Boswellia often comes mixed with something
called Devilsclaw, which I understand is the COX2 component that balances
out the LOX5. I understand taking one of them alone can cause a
susceptibility to the other. I would do a bit of homework on this one if
you are interested in giving it a try. A good ND could define better the
whole science behind it. Also, if you google rosacea, boswellia you will
surely find various rosaceans experiences with it.

----- Original Message -----
From: Elena Mutter
To: rosacea-support@yahoogroups.com
Sent: Thursday, December 07, 2006 7:50 PM
Subject: Re: [rosacea] Having alot of problems lately

Hi Brian,

Thank you so much for taking the time to address me. Well, you know I want
to say no I don't drink alot of caffeine, but I think maybe I do. I was
never a big coffee drinker (for me it was tea and I love plain old
caffeinated black tea), but the past few years I have been drinking coffee.
Usually it is one to two cups in the morning. Regular. Later I switch to tea
and it is usually decaf and green now. I think starting tomorrow I will have
just decaf coffee and tea and see what happens. As for work, I am a stay at
home mom. I've worked here and there (at an afterschool program so my son
could be with me) but for the most part I've always been home. Yes, I use
Thera Tears alot. I also use GenTeal gel drops. I remember all the posts
about the Boswellia. Can I just find it in health food stores in the
supplement section like at Wild oats or maybe Vitamin Shoppe or GNC? You've
given me some real tangeble things to consider Brian and I very much
appreciate it.
Thank you so much.

Take care,
Elena

Brian Shaffner <brianshaffner@earthlink.net> wrote:
Elena,

Re the eyes part of it, curious, do you consume much caffeine? One person
on this list posted that deleting caffenated beverage from their diet
pretty
much cleared their occular symptoms. I know for myself, I normally have
very mild occular symptoms, -except- when I drink coffee or black tea and
then my eyes get irritated. It's also a flush inducer for me, so I dropped
it from my diet. Some people think caffeine is innocent because
technically it is a vasoconstrictor and should be helpful, but plainly for
some of us it is not.

Also, I'm curious... has your work environment changed at all?
Specifically, do you work under fluorescent lighting? A dermatologist once
laughed at me because I told them that was one of my worst triggers, but
it's true, and I'm not alone. Fortunately, I've worked from home for the
past three years. When I look at how my rosacea has progressed in the past
decade, it coincides with the period where I was spending alot more time
at
the office. (and chugging alot of Starbucks) At this point I would fight
tooth and nail to avoid having to work under those lights on a regular
basis.

Have you tried Thera Tears? A lot of rosaceans seem to really like that
brand of eye drops. As for the burning, have you tried any COX2 and/or
LOX5 inhibitors? (too technical to go into, but a google will retrieve all
the data you could want) There are both natural and synthetic versions. A
natural one is the herb Boswellia. Back in March, I was getting some mild
burning sensations and taking Boswellia for a month appeared to stop them
completely, though it probably also has to do with the fact I eliminated
dairy products and corn from my diet around that time, my two all time
worst
rosacea offenders. (in the foods category,at least) In any event, the
burning has not to this point returned.

I realize the above is not terribly concrete for your situation, but hope
it
may prove helpful.
Brian
----- Original Message -----
From: Elena Mutter
To: rosacea-support@yahoogroups.com
Sent: Thursday, December 07, 2006 8:27 AM
Subject: [rosacea] Having alot of problems lately

Hi Everyone,
Well, it's offical that I am in a pretty bad flare at this point. I am
flushing constantly now. It seems to be mostly afternoon, but now it's
hard
to say; it's kind of constant to a low-level degree and then it will
intensify and then go back to this low-level flush/burn. Last night my
right
eye hurt when I closed it too tight and when I washed and looked in the
mirror I noticed there is a bump on the lower outside lid of the right
eye.
I have never had styes or the chalazon's I've heard talked about. I know
that winter is bad for me but this is a whole new level. The last month I
have introduced the RED LED acnelamp, and the Aveeno Ultra Calming line of
skin care products. But it could be a coincidence as I was noticing
redness
of a more permanant nature and increased burning since October. My eye
doctor also reccomended that I stop taking the 80 milligrams of doxy and
go
back to the 40 milligrams and switch from Patanol eye drops to Elestat eye
drops and
Restasis Eye drops. I have been doing that for about a week. And I am a
total mess now. I am burning and flushing on face, ears, top of head, and
eyes..........tons of heat coming off these areas. If I put my hands on
top
of my head you can feel the heat. If I put my hands close to my face,
again,
you can feel the heat. I am so afraid this is going to go into what
happened
to me a few years ago. I can't cope with that again. It was pretty
unbearable not to be able to even be touched by your childs hand. Not to
be
able to have clothes on without excruciating pain. So far, it is just my
face, eyes and head, but that is how it started before too. It is clear
that
dermatologist don't know how to handle this disease. Please, does anyone
know what kind of doctors handle flushing disease?? I am in a very bad
place
right now and crying is killing me! I find that I am better when I first
wake up but as soon as I get going............take a shower and start my
day
it goes bad very fast. I hate and am afraid of drugs but I'd take anything
that stops flushing right now, I just can't do this anymore! What are the
best ones for flushing again...........clonodine, lyrica and there were
others too right? I read Dr. Nases passages last night for the eyes and he
reccomended Borage Seed oil too, but didn't we establish here that Borage
seed oil made us flush? And now Evening Primrose oil too? Why is it so
contradictory?? Sorry, this is long, I know and I am just very desperate
and
depressed now. The derm will see me next Tuesday and I am waiting for a
call
from my eye doctor but it is depressing because I know it will come to
nothing and I will just have to pray it goes away again..........but what
if
it doesn't this time?? That's the fear that haunts me.....
~Elena

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