Acne Rosacea: Re: [rosacea] Having alot of problems lately

Thursday, December 07, 2006

Re: [rosacea] Having alot of problems lately

Hi Christy,

Thank you for your kind words. I just can't believe that no one can help us. It is so amazing to think how long this has been around and really, I don't feel like much progress has been made at all. I know lasers and accutane and RED LED lights are new from the '80's when I was first diagnosed, but it still doesn't seem all that stable. Because if IPL and lasers and accutane were the "miracles" the doctor's say they are then I guess we all wouldn't know one another because we'd all be in remission. Sorry, I am just so down now. I can take so much but I cannot figure out how to be on fire and be cheerful.

Take care,
elena

christy <cthealoha@yahoo.com> wrote:
Hi Elena,
I am soooo sorry to hear of the bad time you are going through... I can't inagine... hang in there... right now, I have been on Solodyn 135 mg slow release for about three months and although I am still pink, my P&Ps have gotten a little better (P&Ps are more of a problem than the flushing- P&Ps are pretty gross looking) and using the Kinerase intensive eye cream ($59 at Sephora) and the cream- "gimme moisture" without SPF ($117 at Sephora)

Good luck Elena, It is so sad to hear the difficulties you are going through- and understandable- right now the new antibiotics are working, but after awhile, like the other ones, they will stop and then I will flare up and begin my new antibiotic treatment...hoping to find one that will at least work for awhile..

Good luck to you elena..

christy

Elena Mutter <emgm42000@yahoo.com> wrote:
Hi Everyone,
Well, it's offical that I am in a pretty bad flare at this point. I am flushing constantly now. It seems to be mostly afternoon, but now it's hard to say; it's kind of constant to a low-level degree and then it will intensify and then go back to this low-level flush/burn. Last night my right eye hurt when I closed it too tight and when I washed and looked in the mirror I noticed there is a bump on the lower outside lid of the right eye. I have never had styes or the chalazon's I've heard talked about. I know that winter is bad for me but this is a whole new level. The last month I have introduced the RED LED acnelamp, and the Aveeno Ultra Calming line of skin care products. But it could be a coincidence as I was noticing redness of a more permanant nature and increased burning since October. My eye doctor also reccomended that I stop taking the 80 milligrams of doxy and go back to the 40 milligrams and switch from Patanol eye drops to Elestat eye drops and
Restasis Eye drops. I have been doing that for about a week. And I am a total mess now. I am burning and flushing on face, ears, top of head, and eyes..........tons of heat coming off these areas. If I put my hands on top of my head you can feel the heat. If I put my hands close to my face, again, you can feel the heat. I am so afraid this is going to go into what happened to me a few years ago. I can't cope with that again. It was pretty unbearable not to be able to even be touched by your childs hand. Not to be able to have clothes on without excruciating pain. So far, it is just my face, eyes and head, but that is how it started before too. It is clear that dermatologist don't know how to handle this disease. Please, does anyone know what kind of doctors handle flushing disease?? I am in a very bad place right now and crying is killing me! I find that I am better when I first wake up but as soon as I get going............take a shower and start my day
it goes bad very fast. I hate and am afraid of drugs but I'd take anything that stops flushing right now, I just can't do this anymore! What are the best ones for flushing again...........clonodine, lyrica and there were others too right? I read Dr. Nases passages last night for the eyes and he reccomended Borage Seed oil too, but didn't we establish here that Borage seed oil made us flush? And now Evening Primrose oil too? Why is it so contradictory?? Sorry, this is long, I know and I am just very desperate and depressed now. The derm will see me next Tuesday and I am waiting for a call from my eye doctor but it is depressing because I know it will come to nothing and I will just have to pray it goes away again..........but what if it doesn't this time?? That's the fear that haunts me.....
~Elena

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