Friday, December 01, 2006

Re: [rosacea] Tamara and z cream (was ponds cold.....)

Hi Elena,

Is there a Sephora store near you? I use a mask from Peter Thomas Roth, it is called Cucumber Gel Mask, it is really soothing n it is designed to calm the redness after laser treatment. I do not know if it will help you or not, but maybe you can ask a sample from Sephora n give it a try, it may give you temporary relief. It is very helpful to me.

Lucia

Elena Mutter <emgm42000@yahoo.com> wrote:
Hi Tamara, thanks so much for all this. I will definitely not use the z cream I have from two years ago. I'll probably make an order this weekend. I think I want the shampoo too because my scalp has been so itchy for so long now I may as well give it a shot when I decide to start. My prescription Nizorol shampoo doesn't seem to do much now. I guess it will take a while for me since it's been over 20 years I've had rosacea. Yikes. But Brady still uses the z cream for maintenace I think. I looked in my natural health books just to see what they may have on demodex mites but that had nothing specific about them. Just parasites in general. That you could take wormwood and black walnut drops internally to help chase away parasites but I have no idea if there would be any benefit at all with the demodex. Thought I'd give it a look though. Today was better than yesterday. So unpredictable. It's getting so all I want to do is drink water and green tea and eat eggs
and almonds. It's the only thing I am sure won't hurt me at this point. Strange life we lead. But I'd do about anything just not to feel on fire. Just getting by feels like Heaven. Know what I mean? I am sure you and everyone here knows exactly what I mean. We're probably the most grateful group of people in the world for even the smallest relief. Does anyone else come alive on cloudy days with cool breezes? New England has had the most amazing two days here. It's been between 60 and 70 degrees, but very little sun and the breeze has been just Heavenly..........would love to bottle it and keep it for all year. And the air has been moister. Very nice. Anyway, thanks again Tamara. Now send me off to sleep with the story of how much softer your skin feels...........LOL

Good night,
Elena

rose jill <roseflowerbloom@yahoo.ca> wrote:
Elena, o.k, I can tell you I have done my homework on the mites and learned alot over the few months ive been taking it, and want to help you in any way i can. First off, the shelf life for z cream is 2 years and once opened walter (from dem solution) 6 months. So if you are over 2 years, its probably best to buy another jar, the last thing you need is to have more problems. There is a post on their messageboard about this too (in case your wondering). Also, the acarid soap many have chosen over the other cleansing soap, so i would suggest to you to buy the acarid soap and the z cream. This is my opinion, you will love the acarid soap because it really gives your skin a good cleaning and keeps the mites away. Elena, when you decide to start the z cream, please only use a very thin layer on your face...and ive learned the best method because it takes time for your skin to adjust..wash with acarid soap..then put water on your face a little to go on then put the z
cream over
(the water) because it keeps it from being pasty and dry. This is a vital step ive learned, because at the beginning, yours eyes will be very sensitive (mint) strong so you will feel your eyes like crying almost..but it subsides within 5 minutes. And the thin layer of z cream is crucial over little water to moisten because its less pasty and you dont need to put alot on. Anyway, elena I am going to be on the z cream for 150 days (as ive spoken to walter about it) and then on a maintenance program (every other day) regime. I want nothing but happiness for you, and you have been through enough, I am so very confident this is your ticket too elena, and I also want to add that if you have access to a physician nearby who can also check under a microscope to ensure this before you start, this can make a huge difference too, that way you are 100% sure and there are no if and or buts about it, you know what i mean!...
Elena, the way ive learned about the mites and so on, the more severe cases take more time healing, of course it varies from person to person, but just know that for example ive had rosacea for maybe 7 years approx, so with all of the damage it has done to my skin...takes time to completely heal the skin inside out. Hang in there and please keep us all posted and if there is anything i can do to help you on your way i am here for you! luv ya lots.....tamara
p.s...most break out at the beginning and it does get worse, but this is also a good sign, because you will know you are killing these buggers and it does require alot of patience, it is a roller coaster ride, you will be dry skin, and for me at the beginning i felt itching and crawling sensations, moving, its very hard to explain WEIRD nevertheless, i also had very itchy scalp when this occured (the buggers were running)lol. Elena, you will know with your gut feelings while you are on the stough if its the mites youll see. bye 4 now tamara

Elena Mutter <emgm42000@yahoo.com> wrote:
Hi Tamara,

It sure is a rollarcoaster ride..........those were the EXACT words in my head last night as I was eating supper! Thank you for all your encouragement and letting me pick your wonderful brain about the z cream treatment. I went to the demodex site last night and I am very curious about the rest of the line too. If these mites play a major roll for some or most of us then shouldn't we also use all the other stuff too? If I use z cream and I make my face a "hostile environment" for them to live on, won't they just move to other parts of me/us? So it would seem to make sense to use the shampoo and body soap too, wouldn't it? I wonder if anyone has used them and if they are too harsh. If the z cream and acarid soap dries us out then wouldn't the shampoo and body wash too? All I know is that looking at all those products just made me imagine how good I could feel if it were all true. I am very curious about the face wash. It sounds like it would be mildier than the< br> acarid soap. I pulled out my jar of z cream that I bought 2 plus years ago when I thought I'd give it a go and could not find an expiration date on it so I don't know if it expires or not. Got a feeling that anything that potent is it's own preservative and there are no worries. Still, I am thinking I will wait until Christmas vacation. Although is there really ever a good time for this sort of thing? Probably summer when no one from my son's school really has to see me LOL..........but really it's not so much the vanity thing as it is the "getting worse before better" thing. I never used to be such a chicken but I think I have been in pain for so long that I am becoming hypersensitive and turning into chicken little over here. I was always good at taking the pain but it's the burning, heat and hotness I can't seem to take. Wish I was stronger. And then for me (don't know if any of you experience this weird little feeling) there's that nagging "okay, they say near
100% success rate and so far I have not chatted with even ONE person on line who's tried it and it didn't work for them, so this is my last shot. My last resort and if it fails. If I'm the 1% it doesn't work for.........." I don't know if I could take the crash of that. It's stupid really; I know, but we've all been let down so many times and I'm sure everyone has their own feelings of different methods that they feel are the "one", the "last resort" typ of thing..........it just feels scary to lose that hope. I've seen how disappointed people are with the lasers and IPL when they fail. It is such a betrayal; you can just "hear" it in their posts; the sadness and shock that it either did nothing for them or made them worse. Sorry, this is long. But to me the z cream and the RED LED light therapy and the diet seemed to make the most sense and I think it's just getting me a little nervous is all. I guess because for me these approach es seem the easiest and least
invassive (except for the getting worse for a while with the z cream)........safest if you will. Okay, I've rattled on long enough. Anyway Tamara, thanks for everything and let me know what you think of the other products on the demodex site and if you think it is something that is needed or do you think just the z cream? Haven't heard anyone say they ever used the other products. The cream seems to be enough.

Take care,
Elena

rose jill wrote:
Ahh Geesh Elena, I wish I can take your pain away, and have all the answers. It is such a screwed up skin problem which can sometimes be so impossible to fiqure out. It is always a roller coaster ride with this, and please dont ever give up, and I remember the last time we spoke, you were having a bad day, and the next day was so much better. Elena, you email me anytime, and if you ever just want to vent....I am here! we are all here to express ourselves and I will always be here for you, Elena do you keep a journal with your daily regime?. It can really make a difference too. Please email me, o.k tamara

Elena Mutter wrote: Thanks Tamara,

You know, yesterday (Tuesday), I noticed a weird and surprising improvement. My skin was less pink/red, my eyes were doing better and I felt pretty much like I did about 2 years ago back when every waking thought was not about Rosacea and how much burning and pain I was in. Can't say I did anything different. I chalked it up to letting go of the stress. Just saying and accepting whatever my mom or husband do to me I'm just not in control of so I just won't stress about it. Honestly, I was almost walking on air yesterday................until 3p.m. rolled around. Now, I did absolutely NOTHING and I mean nothing..........but at three o'clock my eyes felt "warm", like they had a fever. The skin of my face felt "warm and flush" too. By four o'clock when denying the feelings could not be done anymore, I put an ice pack around my neck as I finished cooking supper and then looked in a mirror...........sure enough, from the sides of my nose exte nding out to my cheeks were
all pink and rosy............a flush. Again, I have only experienced two of those in my entire life and only one was explainable due to a few sips of red wine. I have no idea of what is going on. And today, (Wednesday) I am still feeling this way. I am just so down and scared and worried and sad. Is this ANOTHER new phase? Unexplained, constant, low-level flushing?? I am not in extraordinary pain but my eyes feel hot and feverish (and by the way, look perfectly normal) and my face and head are warm to hot and my cheek area is definitely pink to red. I'm so afraid that this is going to turn into the year I burned from head to toe and could not even stand clothes to touch my body! I truly just cannot take one more thing with this disease. I didn't do anything. I swear............I didn't eat anything or drink anything out of the ordinary I just can't do this anymore.....what is wrong with all of us???

~Elena

rose jill wrote:
Elena, yes...go to demodexsolutions.com...then you can go to messageboard and look at the posts there and get alot of info on the forum. And at the main site where it says pictures...you will see hilda before and after (one year) and look at the difference. Elena, for me my break out started on the 5th day i believe it was, and did go crazy for awhile...but these are the signs of mite activity...the break out can last a long while, and it will be a roller coaster ride(at least for me it was) and you will get weird things going on...but my eyes were the first to see marked improvement within 2 weeks. Elena, ya try to start at a time where you dont have to worry. The dryness is not easy, but it is renewing your skin. take care tamara

Elena Mutter wrote: This sounds like such a good thing Tamara. So you could actually take the z cream a little on your eyebrows and in your ears? I never thought to put the Tea Tree oil in my shampoo. That sounds like a better idea than just buying Tea Tree Shampoo and conditioner. I used it once a long time ago and was not impressed with how it left my hair but putting the oil in my Trader Joe's shampoo might be worth a try. So there is a support forum with demodex solutions users? Just type in demodexforum.com? I'd like to go there and see the pictures and hear the stories. I'm so glad you are doing so well with this Tamara! I may try it during Christmas vacation where I will have a little time when I don't have to be "seen" so much. How long before you felt human again and could be seen LOL? When I tried it last year I only did it for about a week and then chickened out because of the dryness of my skin. I'm very tempted to give it another go.
Thanks for all your help.

Take care,
Elena

rose jill wrote:
Elena, I know what you mean about the eyes, believe me. I swear I thought at times i was going blind (literally). My eyes were always bothered, itchy, irritated, sometimes puffy, red, and gritty feeling! it was such a burden for me, I felt so helpless. I put the z cream in my ears and on my eyebrows. I swear the bas..... are the cause of my rosacea. Also, i put tea tree oil in my shampoo for my scalp (drain the suckers for good) and i bathe in Epsom Salts (mites hate it). I feel like ive lost so much of my life, because of these hellish devils, I will drown the rugrats to death if I have to set them on fire I would lol. Elena, I feel like I can see again, and another thing, if you look at the demodexmite forum...look at the pictures and look at HILDA is her name and i have been in touch with her alot...she after one year is rosacea free...and look at the difference in her skin (amazing). Elena, I wash my linens and add a drop of tea tree oil to them, I use a fresh
towel
everyday, keep my cat away from my room now, bathe him good to (thank god he loves water). I have been in touch with many who are doing well with this z cream...some have sent me pictures with there success. Elena, if you ever do it, go slowly only need a little (buy the acarid soap and the z cream use nightly or day and evening if your skin can handle it. Pat your skin with water first and then put a thin layer (very thin) on your face, and see what happens. My eyes were greatly improved in no time! good luck tamara

Elena Mutter wrote:
Wow Tamara............100 percent improvement of eyes?!! Right now, I think that is my most troubling symptom. The last two years they are just "not my eyes".......it's hard to explain. So you didn't get the special eye treatment from the z cream people? Just using the regular z cream on your face and yet your eyes and ears are better even though you are not directly putting z cream on them? My ears are also a misery for me. Always itchy and sore along with my poor scalp. I have seb derm too so I don't know what's what half the time. Anyway, maybe I should give the z cream another try. My Rosacea did a slow crawl to where it is now too Tamara. I am going to be 47 on Dec. 18th and this all started for me at 21. It's really only been the last two years where I want to jump off a bridge from this (just kidding.......I think). That's great about your mom. You know, even way back when I was first struggling with this one doctor had the great humility to ad mit that
they just did not know anything about this strange disease and he mentioned that sometimes it does indeed "just go away". He said it is typically a disease that comes on in the 40's and sometimes later in life in the 60's or so it just goes away. But, as we all know, there is NOTHING typical about this disease. I certainly did not fit ANY of the criteria for having it. I wasn't in my 40's. I wasn't of celtic decent. I did not blush easily. I feel very jipped LOL! Thanks for all this info Tamara. A year, huh? I hope it gets continually better and better for you. Your such a dear.

Take care,
Elena

rose jill wrote:
Elena, my mom said she used chrestor (for her high cholesterol). My mom uses cold ponds cream every night. My sister does not suffer from rosacea. I avoid alcohol at all costs, but what i said was when we were at my sisters, my mom can now drink alcohol, while i stay the heck away from it. Elena and 3rd, so far for the z cream I have seen 100% improvement for my eyes(no longer bother me) (no longer red) My ears (no longer bother me unless I have an allergic reaction to something (which is not as often as it was). The papules, i have less but since the z cream makes you break out here and there when killing the mites, sometimes i still break out and then i notice my skin being very clear afterwards. My cheeks and nose are pink in color not red now. I still react to certain foods, and heat etc... so this is not gone yet, also walter (from the z cream forum) indicates rosacea allergic responses take a year or more to stop reacting, it is a process that takes time.
Elena, I am
still dry skin, but do notice the old skin sloughs off, and i have better renewal skin in replace of it. I am pleases so far, and have yet to see my rosacea gone completely, but going back to the way it was, I am better now for sure. I am 33 years old now, I think i developed it when i was around 26 or so not exactly sure, but it started off slowly like creeping up and then procrascinated into papules along with the flushing. I am type 2 rosacea. I have it cheeks and nose. hope this helps you.
Elena Mutter wrote: Okay Tamara, these are interesting statements. First, what is the cholesterol med your mom is taking so we can look into it. And did you or your sister (sounds like your sister suffers from this too?) give it a try too and what happened? Second, it's so funny about the Ponds. If it is Ponds cold cream then that's what my mom uses too LOL...........it's been around forever and is the "old-fashioned" stuff I think many of our moms used/use. Can your skin tolerate it? And third, you have really stuck it out with the z-cream.......I am so impressed! When you say you are 50% better, is that in all aspects of the Rosacea? Like p&p's, redness, dryness, hot burny skin and flushes? Also, if you had any eye problems, do you find that that is better too? Some people have said that even their eye symptoms got better using z-cream (not even the one they put out specifically for the eyes). Okay, those are my questions. Sorry to overload you but wouldn't it be marvelous if a
great many of us could just start using Ponds cold cream and convince our doctors to give us whatever cholesterol med your mom is on..........ah, a girl can dream can't she?

Take care,
Elena

tamara wrote:
Hey guys, anyone use this? it has mineral oil in it though, is that a
nono for rosaceans? Just wondered about it. My mom uses it every
night, she had rosacea many years, and gone now after taking
cholesterol medication. My mom to this day looks fab. I asked her also
what moisteriser she uses, and she said cold ponds and loves it, will
never change. My mom is lucky, I dont want to use the word cure, but
she has been in remission since the chol. pills...she is very lucky.
My mom use to have it bad, and she also mentioned to me that since her
cat passed away, her skin is even better. WHAT! I have a cat and he is
my baby lol, my dad use to break out in hives and itch and loved the
cat too much so he suffered alot, yaaa i know crazy, he hated going to
the doctors too, it always cracked me up alot, because as soon as we
said "doctors" he would tell us to bugger off.
Anyway, it just makes me think when I think about my mom and when I
visited my sisters...she can now drink wine without flushing, I stay
the heck away until the z cream eliminates this rosacea completely. I
just wanted to mention this, i did mention this before, this is why
every rosacean is so different and there are so many factors involved.
I no longer believe that because my mom has (had) it that because i
developed it, its the irish thing and thats it. For me since being on
the z cream, I am 50% better now and its been almost 3 months on it. I
want you all to know that there is hope, and when I see my mom, she
has never looked better, and her skin cleared by accident as she tells
me...she thinks it is the chol.meds that really made her feel better
inside out, and I am pleased to see my mom in remission, as she had
rosacea for many years. tamara

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at 12:57 PM

[rosacea] Re: Dr. Ross Levy

Jen,

I don't know? I had heard he was a fan of Vbeam but maybe he likes
IPL now..Maybe he could combine the treatments for you. That should
really do the trick. I hear good things about him and may head up
that way myself. Keep me posted..

Ken

--- In rosacea-support@yahoogroups.com, "Jen" <Glew18@...> wrote:
>
> --- In rosacea-support@yahoogroups.com, "agent568" <agent568@>
> wrote:
> >
> Hi Ken,
>
> I had about 15 IPL treatments in the past with pretty good results.
I
> told Dr. Levy this. I think that is why he is doing it. When I went
> to him I told him I was there for that. Do you think I should ask
> about the Vbeam? I never had that done before. Do you think it
would
> be a better treatment? Thanks in advance! Jen
>
>
>
>
> > I thought Dr.Levy performed Vbeam treatments for rosacea? I
wonder
> > why he is using IPL on you? I hope it works well for you this
time..
> >
> > Good luck,
> >
> > Ken
> >
> >
> > --- In rosacea-support@yahoogroups.com, Lucia <lucia11756@> wrote:
> > >
> > > Sounds amazing, I may give it a try!
> > >
> > > Lucia
> > >
> > > Anita <acw5@> wrote: Lucia,
> > >
> > > All I know is that once I started using the Decleor products,
my
> > Rosecea cleared up. My dermatologist was amazed & she told me I
> > didn't need to come back anymore unless I had a flare-up, so I
> > haven't been to see her in about three years. My skin looks
normal
> > now-the redness is gone from my nose & cheeks. I no longer use
the
> > Rose D'Orient night balm-I just use the Harmonie Cream under my
> make-
> > up during the day. Now I use the Aveeno calming cream at night &
it
> > seems to work just as well.
> > > Anita
> > > ----- Original Message -----
> > > From: Lucia
> > > To: rosacea-support@yahoogroups.com
> > > Sent: Wednesday, November 29, 2006 4:39 PM
> > > Subject: Re: [rosacea] makeup - for Anita
> > >
> > > Hi Anita,
> > >
> > > Do you mean you do not have rosacea anymore because of the
> Decleor
> > Harmonie calming day cream & Rose D'orient products? what does
your
> > skin look like now?
> > >
> > > Lucia
> > >
> > > Anita <acw5@> wrote:
> > > Hi, Jen. When I had Rosacea so bad, I used a moisturizer
that
> > was tinted & had sunscreen to tone down the redness before I put
> the
> > foundation on. The one I used was Peter Thomas Roth Tinted
> Protective
> > Day Cream-I got this from Sephora.com.
> > > Aveeno also has some great new products out for calming
> > irritated skin. I love them.
> > > I use Estee Lauder Lucity make up base, but I don't have
much
> > problems with rosacea anymore.
> > > Also, I would suggest Decleor products from Sephora.com for
> > treatment of the Rosacea. They are very expensive, but worth it,
in
> > that once I started using them, my rosecea was cured. I haven't
had
> > to go to the dermatologist for years. There is Harmonie calming
day
> > cream & Rose D'orient products that work wonderfully. Also, if
you
> > check with Sephora.com & tell them your problems, they will
> recommend
> > products for you to use. Hope this helps.
> > > Anita
> > > www.sephora.com
> > > ----- Original Message -----
> > > From: Jen
> > > To: rosacea-support@yahoogroups.com
> > > Sent: Tuesday, November 28, 2006 6:16 AM
> > > Subject: [rosacea] makeup
> > >
> > > Hi everyone,
> > >
> > > Well, I been a Rosacea sufferer for 3 years and had a make up
I
> > > really liked. It's from Maybelline it's called True
Illusion.
> I
> > went
> > > to buy it last night and I found out it's discontinued. I
also
> > used
> > > this foundation for three years. I know feel helpless :( I
> > looked
> > > online and can't find it anywhere! Does anyone have any
> > foundation
> > > suggestions? This one didn't make me break out or cause more
> > redness.
> > > I need to try something new and I am clueless to
foundations.
> > Thanks
> > > guys, you are always helpful to me.
> > >
> > > On a second note: I heard a week ago or so someone mentioned
Dr.
> > Levy
> > > in the Mt. Kisco Medical group in Mt. Kisco. I went to him
> last
> > night
> > > for the first time. He seemed very nice and was the first
> > > dermotologist to be a little more knowledgeable about
Rosacea.
> > > Anyway, I am having an IPL treatment with him on Jan. 5th I
> will
> > let
> > > you guys know how it goes. I have had 13 before previosuly
> with
> > > another doctor. So I am keeping my fingers crossed that I
get
> a
> > > better treatment with him. That post was for all the New
> > Yorkers :)
> > > I'll let you know the outcome. Although, I noticed with him
> you
> > have
> > > to make an appointment three monts before you want to see
him
> > lol
> > > isn't that great!
> > >
> > > [Non-text portions of this message have been removed]
> > >
> > > ---------------------------------
> > > Cheap Talk? Check out Yahoo! Messenger's low PC-to-Phone
call
> > rates.
> > >
> > > [Non-text portions of this message have been removed]
> > >
> > > [Non-text portions of this message have been removed]
> > >
> > >
> > >
> > >
> > >
> > >
> > > ---------------------------------
> > > Check out the all-new Yahoo! Mail beta - Fire up a more
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> > email and get things done faster.
> > >
> > > [Non-text portions of this message have been removed]
> > >
> >
>

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at 9:45 AM

[rosacea] Re: PULSE DYE LASER

If it works for you then you should find that the IPL reduces the intensity and painfulness of the flushes aswell as making them less likly to occur. If it doesn't work for you then there are other options such as pulse dyd laser and Nd: Yag.

You will just have to wait and see how effective IPL is for you, I guess you are probably going to do a series of them

Sarah

--- In rosacea-support@yahoogroups.com, "Penny G. Putnam" <PPGPutnam1@...> wrote:
>
> I am confused about IPL and Pulse Dye Laser. Which is more effective in treating Rosacea
flushing? I just had my second IPL yesterday and was advised this would not stop my flushing
- of course, my next thought was, why am I doing this then? I only have minimal redness
when not flushing. When I flush it can be extreme red, veryhot and painful - not to mention
embarrassing.
> Thank you so much for your help!
>
> [Non-text portions of this message have been removed]
>

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at 9:45 AM

Re: [rosacea] what product? prepration H...

Anita,

I do have some Aveeno cream. Never used any Decleor. Sunscreen is in most of my makeup and creams. I have heard of Elidel. Guess it's all a process of elimination to find what works for you.

I also have tried Arbonne products with no good results. In fact I know a Sandy who is a rep and she is from the mid west. Same Sandy maybe??

For anyone with puffy eyes, this may sound funny but try buying Preparation H for swelling. Buy the type that says, "cream" or the little round discs in the jar and you could keep them in the frig and that would feel good on swollen eyes.

Diana

[Non-text portions of this message have been removed]

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at 9:45 AM

[rosacea] kinerase moisturizer

I have recently received a couple of samples of kinerase from my doctor
(my OB/G- strangely) and so far so good- the moisturizer does not seem
to irritate my rosacea and it does make my face feel rather nice and
has helped some with the flakiness that I was experiencing in the
cooler winter weather..I sincerly hope this one continues to work as
the jojoba oil that at one time was so great, didint seem to work as
well with the winter face flakes :)

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at 9:44 AM

[rosacea] Dr. David J. Goldberg: Combining Light-Based Treatments & Topicals for Rosacea

Hi All,

Dr David J. Goldberg, MD, director of Skin Laser & Surgery Specialists
of New York and New Jersey and a clinical professor of dermatology and
director of laser research at Mount Sinai School of Medicine in New
York, has kindly answered a few questions for us on his Dermatology
Times article, "Combining light-based treatments, topicals for
rosacea". A compilation of these questions and answers has been
added to Experts' Comments section of the Rosacea Support Resource Pages:

http://rosacea-research-foundation.org/wiki/index.php/Combining_Light-Based_Treatments_and_Topicals_for_Rosacea:_Dr._David_J._Goldberg%2C_MD

We'd like to thank Dr. Goldberg again for taking the time to help
answer some of our questions.

The full Rosacea Support Resource Page list can also be browsed from
the following link (or by clicking on the link at the top right of the
Rosacea Support home page):

http://rosacea-research.org/wiki/index.php/Main_Page

Hopefully this new page will provide information that you will find
helpful. Please be sure to discuss the information contained within
the Resource Pages with a qualified physician in order to determine
the best form of treatment for you.

And again, please feel free to send any feedback on the Resource
Pages, including suggestions for modifications, additions, etc to
wiki-feedback@rosacea-research.org

Dan

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at 7:47 AM

Re: [rosacea] PULSE DYE LASER

Hi Elena,

Thank you for the very nice email. I am impressed by how much you know about this stuff already. To answer your questions: I was fortunate to never have had any Mercury fillings. In regards to the parasites: a combo of Black Walnut, pumpkin, gentian root.. in fact, here is Dr Szulc website, I believe the parasite cleanse is on the site, as well as all the cosmetics I use- Miessence- an australian brand- all certified organic- no sulfates, preservatives, - nothing you couldn't eat!!
http://www.innovativemedicine.com/aboutus/aboutdr.php

I think what it comes down to is that I was always so challenged to find the next 'answer', I realized there is no answer (for me) maybe for others there is.. rosacea is a very complex disorder, and I think we've done people a huge injustice by viewing it in such a singular context... we deny ourselves the ability to really treat it when dermatologists are the only dr's to take it on- they still can't even cure acne!!!

I left out a huge component and that is STRESS REDUCTION... and knowing one's body.. I began to listen to my body- foods, stress, exercise and I think that was a big thing for me..

Please let me know what has worked for you..

Elena Mutter <emgm42000@yahoo.com> wrote:
Hi Joy,

Did you end up taking out silver amalgam fillings for the mercury toxcity? I began that process with what was supposed to be a good holistic dentist. He really knew his stuff. I've always been convinced that the mercury fillings were a BIG part of overall bad health. Most of them are out now but I got so much worse (not sick but my teeth were in huge amounts of pain for years after) that I stopped going to him. Anyway, just curious. It sounds like you found a great doctor there, but unfortunately, holistic MD's are few and far between. What approach did he/she take in regards to the elimination of parasites, if you don't mind sharing? I know that wormword, black walnut hull, raw pumpkin seeds and coconut are ways of naturally eliminating them but am curious if there are also other things to do. It sounds like you have really gotten on track. I am very happy to hear how well you feel. I have always believed that all disease and especially skin problems is your
body trying to eliminate the crap that we are exposed to. We live in such a toxic world and it is very hard to try to do all these things for yourself without the help of some specialist that knows what they are doing. I'd be interested to hear more of story. I'm in Massachusetts and know of two medical doctors who also lean to holisitc type treatments. One is also a Homeopath. Anyway, good to hear some of your story. Very uplifting and interesting.

Take care,
Elena

joy menary <joyyums79@yahoo.com> wrote:
I would love to share with you all the details:

I'll begin with prefacing my experiencing with stating that I too went through the entire gamut: topicals, antibiotics, all of the stuff that many people on this group have discussed; from cleaners to eliminating histamine foods to looking into H.Pylori to Demodex mites- none of which brought real relief- only temporary abatement of symptoms- which also still flared even while taking all the drugs.
My relief began when I visited a Dr. by the name of Dr. Thomas Szulc, here in NYC. He is a traditional doctor who has also studied non-traditional modalities. He subscribes to the belief that ALL disease stems from underlying viruses, bacteria, yeast, parasites..
I began treatment last fall. My initial consultation it was determined that I would go off the following: 20mg, twice/day of Doxycycline,(rosacea) Zelnorm (help me go to the bathroom) and Zoloft(to control blushing).
I was diagnosed with the HHV-6 virus, Fluke(an intestinal parasite), candidiasis from all the antibiotics( I was also taking a lot of acidophilus- but if you're body is not assimilating it- it's not working), and lastly, heavy metal toxicity. I went through the various treatments to eliminate the viruses and yeast and heavy metals... it was amazing- my skin cleared, I began to sweat in response to heat- not turn red or flush, I was able to to perceive situations for how they were rather than as a situation that I would blush in... the newfound health was not just about my skin, I began to even see the past few years with rosacea as a gift - my body was trying to tell me I was sick and I wasn't listening- I gave the ability to heal myself over to Dr's who just perpetuated a cycle of toxicity through drugs, topicals,....
Another huge part of my health was my diet, now that I was able to absorb nutrients and minerals again ...
I began the following: All organic Fruits and vegetables, no Gluten(inflammatory), no Dairy(hard to digest, except a little Goat's Milk or Goat's Milk cheese), no Sugar(a little raw honey occasionally), organic chicken, organic turkey, free range lamb (no pork,no beef- overly acidic in our system)- it's best to be more alkaline. Green juices everyday, shots of wheatgrass, 45 min. of cardio to bring about sweating, 30 minutes in the sauna 2-3 times a week- again sweating (another great way to eliminate heavy metals). A focus on primarily raw foods, brown rice, good healthy fat.. tons of veggies!!! BUT,,,, if you are sick... this stuff can only go sooo far. I urge you to seek out a REALLY GOOD holistic doctor- I can ask Dr szulc if he knows of any in AZ... Back to the PDL... after everything I said it now makes sense to me why I didn't recover well from all the v-beams I did before- it could've been that I was struggling to recover and now that I am very strong withou t the
rosacea anymore I can bounce back. The reason that I am even doing the PDL is to get rid of the few capillaries and slight redness that still lingers from the past 12 years that I suffered. I have a lot more to share with you- I can't stress enough that if you are not doing great with your skin right now that the PDL might be like painting a wall that has chipping paint and dirt - I know that you probably want to do the surgery really bad because it provides a lot of hope and that in itself is healing but maybe make sure that you are working with an enlightened doctor who you see REAL results from... I will never forget the feelings of elation when my true healthy body began to shine- .

Please feel free to look into the Cynergy 3:
http://www.cynosurelaser.com/cynergy_laser.html

maybe you'd like to call and find a derm in your area that uses the cynergy 3-

I will write more later with some more details..

nic <nic_s_3@yahoo.com> wrote:
I'd greatly appreciate any more info you could provide me with PDL, Joy. My doctor only offers the V-beam, but I'd be interested to know locations where they perform Cynergy in case there's one that's not too far from me. I'm in Arizona. I'd like to know the joules used, and how long do you find that you're bruised and/or have increased pinkness/redness. Would you say that you didn't really notice the change until 1 month later or was it noticeable sooner? I was also wondering why you didn't have a good experience with the Candela V-beam. My skin has become more pink since a full flare that started in January, and now my eyes are blood shot and sore all the time. The flushing has improved, but its still bad when I sleep at night and I feel like I'm getting pinker everday. I don't have the papules or pustules, but I do have seb derm..the skin on my cheeks and nose becomes flakey if I try to wear makeup and I'm not sure if this is seb derm or eczema or just rosacea
dermatitis. I've changed my diet a bit...although I've always eaten very healthy. I take more supplements, but nothing seems to be helping. I'd be interested to know how you changed your diet to address yeast, viruses, bacteria, and parasites. I take doxycycline (50 mg every other day) so I'm not sure thats maybe causing or at least fueling the seb-derm and skin peeling or if it has no effect. I'm a female and haven't had any female problems with taking the dox, but i do take acidophilus so maybe that's why.
Thanks

----- Original Message ----
From: joy menary <joyyums79@yahoo.com>
To: rosacea-support@yahoogroups.com
Sent: Wednesday, November 29, 2006 3:22:34 PM
Subject: Re: [rosacea] PULSE DYE LASER

I should clarify between the pulse dye and the Cynergy 3 dual PDL+Yag. I did not have good experiences with the Candela V-Beam. I did have a great experience with the Cynergy. It has been one month since my first treatment with Cynergy, and I've noticed a substantial improvement in the visible spider veins, diffused redness, and blushing. I can find out the joules for you when I go for my second visit on Saturday. I can share with you what works for me with PDL:
I can tolerate light purpura, the treatments are ineffective and highly inflammatory for me without the purpura, and too much purpura lends itself to more hyperpigmentation and a longer recovery.

In addition to the work I have done with laser surgery, I have also completely changed my diet, addressed yeast, viruses, bacteria, and parasites in my system, and eliminated all toxic products from my life and body. I can truly say that I am on an amazing healing path with a huge decrease in symptoms(if I can call them that anymore). I would be very happy to share with you my story is you are interested.

nic <nic_s_3@yahoo. com> wrote:
Hi Joy,
Did you find the pulse dye treatments reduced diffuse redness or mainly just spider veins? Did you find after you healed from your initial v-beam that your skin improved at all. Do you know what joules were used? My doctor recommended it as well.
Thanks

----- Original Message ----
From: joy menary <joyyums79@yahoo. com>
To: rosacea-support@ yahoogroups. com
Sent: Monday, November 27, 2006 12:09:43 PM
Subject: Re: [rosacea] PULSE DYE LASER

I have had several pulse dye treatments. My initial treatment was with the V-beam, in which I had considerable purpura and downtime. Last month I had the Cynergy 3 laser which is the v-beam and Yag laser- a simultaneous pulse. The results have been great- I healed in 2 weeks, the purpura and pigmentation went away quickly and the capillaries were much less noticable after one treatment.

lalie1234 <lalie1234@yahoo. com> wrote: MY DOCTOR RECOMMEND ME THE TREATMENT WITH PULSE DYE LASER.
I WANT TO KNOW IF SOMEONE HAD THAT TREATMENT BEFORE AND HOW IT WORK?
AND IF IT WORK?

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__,_._,___
at 7:33 AM

Re: [rosacea] PULSE DYE LASER

Hi Joy,

Did you end up taking out silver amalgam fillings for the mercury toxcity? I began that process with what was supposed to be a good holistic dentist. He really knew his stuff. I've always been convinced that the mercury fillings were a BIG part of overall bad health. Most of them are out now but I got so much worse (not sick but my teeth were in huge amounts of pain for years after) that I stopped going to him. Anyway, just curious. It sounds like you found a great doctor there, but unfortunately, holistic MD's are few and far between. What approach did he/she take in regards to the elimination of parasites, if you don't mind sharing? I know that wormword, black walnut hull, raw pumpkin seeds and coconut are ways of naturally eliminating them but am curious if there are also other things to do. It sounds like you have really gotten on track. I am very happy to hear how well you feel. I have always believed that all disease and especially skin problems is your
body trying to eliminate the crap that we are exposed to. We live in such a toxic world and it is very hard to try to do all these things for yourself without the help of some specialist that knows what they are doing. I'd be interested to hear more of story. I'm in Massachusetts and know of two medical doctors who also lean to holisitc type treatments. One is also a Homeopath. Anyway, good to hear some of your story. Very uplifting and interesting.

Take care,
Elena

joy menary <joyyums79@yahoo.com> wrote:
I would love to share with you all the details:

I'll begin with prefacing my experiencing with stating that I too went through the entire gamut: topicals, antibiotics, all of the stuff that many people on this group have discussed; from cleaners to eliminating histamine foods to looking into H.Pylori to Demodex mites- none of which brought real relief- only temporary abatement of symptoms- which also still flared even while taking all the drugs.
My relief began when I visited a Dr. by the name of Dr. Thomas Szulc, here in NYC. He is a traditional doctor who has also studied non-traditional modalities. He subscribes to the belief that ALL disease stems from underlying viruses, bacteria, yeast, parasites..
I began treatment last fall. My initial consultation it was determined that I would go off the following: 20mg, twice/day of Doxycycline,(rosacea) Zelnorm (help me go to the bathroom) and Zoloft(to control blushing).
I was diagnosed with the HHV-6 virus, Fluke(an intestinal parasite), candidiasis from all the antibiotics( I was also taking a lot of acidophilus- but if you're body is not assimilating it- it's not working), and lastly, heavy metal toxicity. I went through the various treatments to eliminate the viruses and yeast and heavy metals... it was amazing- my skin cleared, I began to sweat in response to heat- not turn red or flush, I was able to to perceive situations for how they were rather than as a situation that I would blush in... the newfound health was not just about my skin, I began to even see the past few years with rosacea as a gift - my body was trying to tell me I was sick and I wasn't listening- I gave the ability to heal myself over to Dr's who just perpetuated a cycle of toxicity through drugs, topicals,....
Another huge part of my health was my diet, now that I was able to absorb nutrients and minerals again ...
I began the following: All organic Fruits and vegetables, no Gluten(inflammatory), no Dairy(hard to digest, except a little Goat's Milk or Goat's Milk cheese), no Sugar(a little raw honey occasionally), organic chicken, organic turkey, free range lamb (no pork,no beef- overly acidic in our system)- it's best to be more alkaline. Green juices everyday, shots of wheatgrass, 45 min. of cardio to bring about sweating, 30 minutes in the sauna 2-3 times a week- again sweating (another great way to eliminate heavy metals). A focus on primarily raw foods, brown rice, good healthy fat.. tons of veggies!!! BUT,,,, if you are sick... this stuff can only go sooo far. I urge you to seek out a REALLY GOOD holistic doctor- I can ask Dr szulc if he knows of any in AZ... Back to the PDL... after everything I said it now makes sense to me why I didn't recover well from all the v-beams I did before- it could've been that I was struggling to recover and now that I am very strong withou t the
rosacea anymore I can bounce back. The reason that I am even doing the PDL is to get rid of the few capillaries and slight redness that still lingers from the past 12 years that I suffered. I have a lot more to share with you- I can't stress enough that if you are not doing great with your skin right now that the PDL might be like painting a wall that has chipping paint and dirt - I know that you probably want to do the surgery really bad because it provides a lot of hope and that in itself is healing but maybe make sure that you are working with an enlightened doctor who you see REAL results from... I will never forget the feelings of elation when my true healthy body began to shine- .

Please feel free to look into the Cynergy 3:
http://www.cynosurelaser.com/cynergy_laser.html

maybe you'd like to call and find a derm in your area that uses the cynergy 3-

I will write more later with some more details..

nic <nic_s_3@yahoo.com> wrote:
I'd greatly appreciate any more info you could provide me with PDL, Joy. My doctor only offers the V-beam, but I'd be interested to know locations where they perform Cynergy in case there's one that's not too far from me. I'm in Arizona. I'd like to know the joules used, and how long do you find that you're bruised and/or have increased pinkness/redness. Would you say that you didn't really notice the change until 1 month later or was it noticeable sooner? I was also wondering why you didn't have a good experience with the Candela V-beam. My skin has become more pink since a full flare that started in January, and now my eyes are blood shot and sore all the time. The flushing has improved, but its still bad when I sleep at night and I feel like I'm getting pinker everday. I don't have the papules or pustules, but I do have seb derm..the skin on my cheeks and nose becomes flakey if I try to wear makeup and I'm not sure if this is seb derm or eczema or just rosacea
dermatitis. I've changed my diet a bit...although I've always eaten very healthy. I take more supplements, but nothing seems to be helping. I'd be interested to know how you changed your diet to address yeast, viruses, bacteria, and parasites. I take doxycycline (50 mg every other day) so I'm not sure thats maybe causing or at least fueling the seb-derm and skin peeling or if it has no effect. I'm a female and haven't had any female problems with taking the dox, but i do take acidophilus so maybe that's why.
Thanks

----- Original Message ----
From: joy menary <joyyums79@yahoo.com>
To: rosacea-support@yahoogroups.com
Sent: Wednesday, November 29, 2006 3:22:34 PM
Subject: Re: [rosacea] PULSE DYE LASER

I should clarify between the pulse dye and the Cynergy 3 dual PDL+Yag. I did not have good experiences with the Candela V-Beam. I did have a great experience with the Cynergy. It has been one month since my first treatment with Cynergy, and I've noticed a substantial improvement in the visible spider veins, diffused redness, and blushing. I can find out the joules for you when I go for my second visit on Saturday. I can share with you what works for me with PDL:
I can tolerate light purpura, the treatments are ineffective and highly inflammatory for me without the purpura, and too much purpura lends itself to more hyperpigmentation and a longer recovery.

In addition to the work I have done with laser surgery, I have also completely changed my diet, addressed yeast, viruses, bacteria, and parasites in my system, and eliminated all toxic products from my life and body. I can truly say that I am on an amazing healing path with a huge decrease in symptoms(if I can call them that anymore). I would be very happy to share with you my story is you are interested.

nic <nic_s_3@yahoo. com> wrote:
Hi Joy,
Did you find the pulse dye treatments reduced diffuse redness or mainly just spider veins? Did you find after you healed from your initial v-beam that your skin improved at all. Do you know what joules were used? My doctor recommended it as well.
Thanks

----- Original Message ----
From: joy menary <joyyums79@yahoo. com>
To: rosacea-support@ yahoogroups. com
Sent: Monday, November 27, 2006 12:09:43 PM
Subject: Re: [rosacea] PULSE DYE LASER

I have had several pulse dye treatments. My initial treatment was with the V-beam, in which I had considerable purpura and downtime. Last month I had the Cynergy 3 laser which is the v-beam and Yag laser- a simultaneous pulse. The results have been great- I healed in 2 weeks, the purpura and pigmentation went away quickly and the capillaries were much less noticable after one treatment.

lalie1234 <lalie1234@yahoo. com> wrote: MY DOCTOR RECOMMEND ME THE TREATMENT WITH PULSE DYE LASER.
I WANT TO KNOW IF SOMEONE HAD THAT TREATMENT BEFORE AND HOW IT WORK?
AND IF IT WORK?

------------ --------- --------- ---
Check out the all-new Yahoo! Mail beta - Fire up a more powerful email and get things done faster.

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Everyone is raving about the all-new Yahoo! Mail beta.
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at 4:48 AM

[rosacea] Re: PULSE DYE LASER

I am confused about IPL and Pulse Dye Laser. Which is more effective in treating Rosacea flushing? I just had my second IPL yesterday and was advised this would not stop my flushing - of course, my next thought was, why am I doing this then? I only have minimal redness when not flushing. When I flush it can be extreme red, veryhot and painful - not to mention embarrassing.
Thank you so much for your help!

[Non-text portions of this message have been removed]

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__,_._,___
at 3:18 AM

Re: [rosacea] Dr. Copeland Skincare...

Kari
I see she uses SD alcohol and glycolic acid in her anti aging products
I know they would cause me problems!! I don't see anything she makes I could use, personally...and they are pricey!

kari_rocks19 <kareebear@clearwire.net> wrote:
Hello,

I am just watching this skincare show on ShopNBC and I am wondering
whether or not anyone on here has tried any of her (Dr. Copeland's)
products. I know they are all fragrance-free, and all allergy tested,
I wrote her to see if she offers samples, I am kinda excited to try
her products. Lemmme know if anyone else has tried her products. I
will keep you posted to see what she says about samples, and if I get
some if it works or not! On goes the search!!

-Kari

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__,_._,___
at 2:04 AM
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